The Open Rheumatology Journal

ISSN: ― Volume ,

Development of Canadian Recommendations for the Management of ANCA-Associated Vasculitides: Results of the National Needs Assessment Questionnaire

Leilani Famorca 1, Marinka Twilt 2, Lillian Barra 3, Volodko Bakowsky 4, Susanne Benseler 5, David Cabral 6, Simon Carette 7, Navjot Dhindsa 8, Aurore Fifi-Mah 9, Michelle Goulet 10, Nader Khalidi 11, Majed Khraishi 12, Lucy McGeoch 7, Nataliya Milman 13, Christian Pineau 14, Kam Shojania 15, Regina Taylor-Gjevre 16, Tanveer Towheed 17, Judith Trudeau 18, Elaine Yacyshyn 19, Patrick Liang 20, Christian Pagnoux*, 7, for the Canadian Vasculitis network (CanVasc)
1 Langs Community Centre, Cambridge, Ontario, Canada
2 Division of Rheumatology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada
3 Division of Rheumatology, St. Joseph’s Health Care, London, Ontario, Canada
4 Division of Rheumatology, Nova Scotia Rehabilitation Center, QEII HSC, Halifax, Nova Scotia, Canada
5 Division of Rheumatology, Department of Paediatrics, Alberta Children's Hospital, Calgary, Alberta, Canada
6 Division of Rheumatology, BC Children's Hospital, Vancouver, British Columbia, Canada
7 Department of Rheumatology, Mount Sinai Hospital, Toronto, University of Toronto, Ontario, Canada
8 Section of Rheumatology, University of Manitoba, Arthritis Centre, Winnipeg, Manitoba, Canada
9 Division Division of Rheumatology, South Health Campus, University of Calgary, Calgary, Alberta, Canada
10 Division of Internal Medicine, Hôpital du Sacré-Coeur de Montréal, Montréal, Quebec, Canada
11 Division of Rheumatology, St. Joseph's Healthcare Hamilton, McMaster University Hamilton, Ontario, Canada
12 Division of Rheumatology, Memorial University of Newfoundland, St. John’s, Newfoundland, Canada
13 Arthritis Centre at the Ottawa Hospital, Riverside Campus, Ottawa, Ontario, Canada
14 McGill University, MUHC Lupus and Vasculitis clinic, Montréal, Québec, Canada
15 Division of Rheumatology, Vancouver General Hospital and St. Paul's Hospital, Vancouver, British Columbia, Canada
16 Division of Rheumatology, Department of Medicine, Royal University Hospital, University of Saskatchewan, Saskatoon, Canada
17 Department of Medicine, Queen's University, Kingston, Ontario, Canada
18 Division of Rheumatology, CHAU de Lévis, Lévis, Quebec, Canada
19 Division of Rheumatology, University of Alberta, Edmonton, Alberta, Canada
20 Division of Rheumatology, Centre Hospitalier Universitaire de Sherbrooke, Sherbrooke, Quebec, Canada


Objectives :

To study variations in Canadian clinical practice patterns for the management of ANCA-associated vasculitis (AAV) and identify points to consider for the development of national recommendations.

Material and Methodology :

A 30-item needs assessment questionnaire was sent to all members of the Canadian Vasculitis network (CanVasc), Canadian Rheumatology Association (CRA), Canadian Thoracic Society (CTS) and Canadian Society of Nephrology (CSN). Respondent characteristics, practice patterns, concerns and expectations were analyzed.

Results :

Among 132 physicians who followed at least 1 vasculitis patient and responded to the survey, 39% stated that they felt confident in their management of AAV. Several variations in practice were observed regarding diagnostic procedure, induction and maintenance treatments and use of biologics; some were due to logistic constraints (difficulties in access to some specific tests, drugs or care; lack of health care coverage for the costs). The top 5 topics for which recommendations are expected involve treatment for remission induction, maintenance, refractory disease, and relapse as well as biologics.

Conclusion :

Practice variations identified in this needs assessment survey will serve to formulate key questions for the development of CanVasc recommendations.

Keywords: ANCA-associated vasculitis, CanVasc, physician practice patterns.

Article Information

Identifiers and Pagination:

Year: 2015
Volume: 9
First Page: 16
Last Page: 20
Publisher Id: TORJ-9-16
DOI: 10.2174/18743129014090100016

Article History:

Received Date: 10/11/2014
Revision Received Date: 9/3/2015
Acceptance Date: 13/3/2015
Electronic publication date: 14 /4/2015
Collection year: 2015

© Famorca et al.; Licensee Bentham Open.

open-access license: This is an open access article licensed under the terms of the Creative Commons Attribution Non-Commercial License ( which permits unrestricted, non-commercial use, distribution and reproduction in any medium, provided the work is properly cited.

* Address correspondence to this author at the Mount Sinai Hospital, The Joseph and Wolfe Lebovic Building, R 2-220, 60 Murray Street, Toronto, ON, M5T 3L9, Canada; Tel: +1-416-586-4800, Ext. 8549; Fax: +1-416-586-8766; E-mail:§ A complete and updated list of CanVasc founders, bureau, core, associated and affiliated members can be downloaded from:

Track Your Manuscript:


"Open access will revolutionize 21st century knowledge work and accelerate the diffusion of ideas and evidence that support just in time learning and the evolution of thinking in a number of disciplines."

Daniel Pesut
(Indiana University School of Nursing, USA)

"It is important that students and researchers from all over the world can have easy access to relevant, high-standard and timely scientific information. This is exactly what Open Access Journals provide and this is the reason why I support this endeavor."

Jacques Descotes
(Centre Antipoison-Centre de Pharmacovigilance, France)

"Publishing research articles is the key for future scientific progress. Open Access publishing is therefore of utmost importance for wider dissemination of information, and will help serving the best interest of the scientific community."

Patrice Talaga
(UCB S.A., Belgium)

"Open access journals are a novel concept in the medical literature. They offer accessible information to a wide variety of individuals, including physicians, medical students, clinical investigators, and the general public. They are an outstanding source of medical and scientific information."

Jeffrey M. Weinberg
(St. Luke's-Roosevelt Hospital Center, USA)

"Open access journals are extremely useful for graduate students, investigators and all other interested persons to read important scientific articles and subscribe scientific journals. Indeed, the research articles span a wide range of area and of high quality. This is specially a must for researchers belonging to institutions with limited library facility and funding to subscribe scientific journals."

Debomoy K. Lahiri
(Indiana University School of Medicine, USA)

"Open access journals represent a major break-through in publishing. They provide easy access to the latest research on a wide variety of issues. Relevant and timely articles are made available in a fraction of the time taken by more conventional publishers. Articles are of uniformly high quality and written by the world's leading authorities."

Robert Looney
(Naval Postgraduate School, USA)

"Open access journals have transformed the way scientific data is published and disseminated: particularly, whilst ensuring a high quality standard and transparency in the editorial process, they have increased the access to the scientific literature by those researchers that have limited library support or that are working on small budgets."

Richard Reithinger
(Westat, USA)

"Not only do open access journals greatly improve the access to high quality information for scientists in the developing world, it also provides extra exposure for our papers."

J. Ferwerda
(University of Oxford, UK)

"Open Access 'Chemistry' Journals allow the dissemination of knowledge at your finger tips without paying for the scientific content."

Sean L. Kitson
(Almac Sciences, Northern Ireland)

"In principle, all scientific journals should have open access, as should be science itself. Open access journals are very helpful for students, researchers and the general public including people from institutions which do not have library or cannot afford to subscribe scientific journals. The articles are high standard and cover a wide area."

Hubert Wolterbeek
(Delft University of Technology, The Netherlands)

"The widest possible diffusion of information is critical for the advancement of science. In this perspective, open access journals are instrumental in fostering researches and achievements."

Alessandro Laviano
(Sapienza - University of Rome, Italy)

"Open access journals are very useful for all scientists as they can have quick information in the different fields of science."

Philippe Hernigou
(Paris University, France)

"There are many scientists who can not afford the rather expensive subscriptions to scientific journals. Open access journals offer a good alternative for free access to good quality scientific information."

Fidel Toldrá
(Instituto de Agroquimica y Tecnologia de Alimentos, Spain)

"Open access journals have become a fundamental tool for students, researchers, patients and the general public. Many people from institutions which do not have library or cannot afford to subscribe scientific journals benefit of them on a daily basis. The articles are among the best and cover most scientific areas."

M. Bendandi
(University Clinic of Navarre, Spain)

"These journals provide researchers with a platform for rapid, open access scientific communication. The articles are of high quality and broad scope."

Peter Chiba
(University of Vienna, Austria)

"Open access journals are probably one of the most important contributions to promote and diffuse science worldwide."

Jaime Sampaio
(University of Trás-os-Montes e Alto Douro, Portugal)

"Open access journals make up a new and rather revolutionary way to scientific publication. This option opens several quite interesting possibilities to disseminate openly and freely new knowledge and even to facilitate interpersonal communication among scientists."

Eduardo A. Castro
(INIFTA, Argentina)

"Open access journals are freely available online throughout the world, for you to read, download, copy, distribute, and use. The articles published in the open access journals are high quality and cover a wide range of fields."

Kenji Hashimoto
(Chiba University, Japan)

"Open Access journals offer an innovative and efficient way of publication for academics and professionals in a wide range of disciplines. The papers published are of high quality after rigorous peer review and they are Indexed in: major international databases. I read Open Access journals to keep abreast of the recent development in my field of study."

Daniel Shek
(Chinese University of Hong Kong, Hong Kong)

"It is a modern trend for publishers to establish open access journals. Researchers, faculty members, and students will be greatly benefited by the new journals of Bentham Science Publishers Ltd. in this category."

Jih Ru Hwu
(National Central University, Taiwan)

SCImago Journal Ranking

SCImago Journal & Country Rank

Browse Contents

Webmaster Contact:
Copyright © 2020 Bentham Open