| – | Office [n (%)] | Clinic [n (%)] | Organization [n (%)] | |||||||
|---|---|---|---|---|---|---|---|---|---|---|
|
Total (n = 88) |
Female (n = 52) |
Male (n = 36) |
Total (n = 90) |
Female (n = 66) |
Male (n = 24) |
Total (n = 83) |
Female (n = 74) |
Male (n = 9) |
||
| Previous Participation in a Clinical Study | 10 (11.4) | 6 (11.5) | 4 (11.1) | 31 (34.4) | 23 (34.8) | 8 (33.3) | 12 (14.5) | 8 (10.8) | 4 (44.4) | |
| For Patients who had previously participated in a Study: Means of information about that study# | Family Doctor/ Rheumatologist | 10 (100) | 6 (100) | 4 (100) | 30 (96.8) | 23 (100) | 7 (87.5) | 11 (91.7) | 7 (87.5) | 4 (100) |
| Internet | 0 | 0 | 0 | 1 (3.2) | 0 | 1 (12.5) | 1 (8.3) | 1 (12.5) | 0 | |
| Newspaper/Magazine | 0 | 0 | 0 | 1 (3.2) | 0 | 1 (12.5) | 0 | 0 | 0 | |
| Friends/Neighbours | 0 | 0 | 0 | 3 (9.7) | 2 (8.7) | 1 (12.5) | 1 (8.3) | 1 (12.5) | 0 | |
| For patients who never participated in a study: means of information about clinical studies# | Family doctor/ Rheumatologist | 59 (75.6) | 34 (73.9) | 25 (78.1) | 23 (39) | 17 (39.5) | 6 (39.5) | 4 (5.6) | 3 (4.5) | 1 (20) |
| Internet | 1 (1.3) | 1 (2.2) | 0 | 2 (3.4) | 2 (4.7) | 0 | 6 (8.5) | 5 (7.6) | 1 (20) | |
| Newspaper/Magazine | 0 | 0 | 0 | 0 | 0 | 0 | 6 (8.5) | 6 (9.1) | 0 | |
| Friends/Neighbours | 0 | 0 | 0 | 2 (3.4) | 1 (2.3) | 1 (6.3) | 12 (16.9) | 11 (16.7) | 1 (20) | |
| Never Received Information | 19 (24.4) | 12 (26.1) | 7 (21.9) | 35 (59.3) | 25 (58.1) | 10 (62.5) | 46 (64.8) | 42 (63.6) | 4 (80) | |
| Office [n (%)] | Clinic [n (%)] | Organization [n (%)] | ||||||||
|
Total (n = 88) |
Female (n = 52) |
Male (n = 36) |
Total (n = 90) |
Female (n = 66) |
Male (n = 24) |
Total (n = 83) |
Female (n = 74) |
Male (n = 9) |
||
| Preferred Means of Information# | Family Doctor/rheumatologist | 73 (83.0) | 44 (84.6) | 29 (80.6) | 85 (94.4) | 63 (95.5) | 22 (91.7) | 75 (90.4) | 68 (91.9) | 7 (77.8) |
| Newspapers | 21 (23.9) | 17 (32.7) | 4 (11.1) | 13 (14.4) | 11 (16.7) | 2 (8.3) | 28 (33.7) | 24 (32.4) | 4 (44.4) | |
| Other media | 27 (30.7) | 17 (32.7) | 10 (27.8) | 27 (30.0) | 21 (31.8) | 6 (25.0) | 28 (33.7) | 25 (33.8) | 3 (33.3) | |
| No Answer Provided | 7 (8.0) | 3 (5.8) | 4 (11.1) | 0 | 0 | 0 | 0 | 0 | 0 | |
| Motivations for Participation# | Better care | 48 (54.5) | 26 (50.0) | 22 (61.1) | 69 (76.7) | 51 (77.3) | 18 (75.0) | 73 (88.0) | 66 (89.2) | 7 (77.8) |
| Designated Personal Contact | 26 (29.5) | 17 (32.7) | 9 (25) | 44 (48.9) | 32 (48.5) | 12 (50.0) | 34 (41.0) | 31 (41.9) | 3 (33.3) | |
| Frequent Appointments | 32 (36.4) | 19 (36.5) | 13 (36.1) | 49 (54.4) | 39 (59.1) | 10 (41.7) | 42 (50.6) | 39 (52.7) | 3 (33.3) | |
| No Waiting Times | 28 (31.8) | 15 (28.8) | 13 (36.1) | 33 (36.7) | 26 (39.4) | 7 (29.2) | 31 (37.3) | 28 (37.8) | 3 (33.3) | |
| Payment for Participation | 10 (11.4) | 7 (13.5) | 3 (8.3) | 13 (14.4) | 9 (13.6) | 4 (16.7) | 16 (19.3) | 15 (20.3) | 1 (11.1) | |
| No Answer Provided | 21 (23.9) | 14 (26.9) | 7 (19.4) | 6 (6.7) | 4 (6.1) | 2 (8.3) | 2 (2.4) | 1 (1.4) | 1(11.1) | |
| Office [n (%)] | Clinic [n (%)] | Organization [n (%)] | ||||||||
|
Total (n = 88) |
Female (n = 52) |
Male (n = 36) |
Total (n = 90) |
Female (n = 66) |
Male (n = 24) |
Total (n = 83) |
Female (n = 74) |
Male (n = 9) |
||
| Drawbacks for Participation# | Concerns about a drug not yet on the market | 20 (22.7) | 18 (34.6) | 2 (5.6) | 14 (15.6) | 12 (18.2) | 2 (8.3) | 14 (16.9) | 12 (16.2) | 2 (22.2) |
| Concers about being used as a “guinea pig” | 22 (25.0) | 17 (32.7) | 5 (14.3) | 15 (16.7) | 12 (18.2) | 2 (8.3) | 22 (26.5) | 20 (27) | 2 (22.2) | |
| Time and effort | 21 (23.9) | 14 (26.9) | 7 (19.4) | 14 (15.6) | 12 (18.2) | 2 (8.3) | 16 (19.3) | 13 (17.6) | 3 (33.2) | |
| Lack of trust in a “new” doctor | 8 (9.1) | 4 (7.7) | 4 (11.1) | 1 (1.1) | 0 | 1 (4.2) | 9 (10.8) | 7 (9.5) | 2 (22.2) | |
| Disease severity | 2 (2.3) | 0 | 2 (5.6) | 8 (8.9) | 5 (7.6) | 3 (12.5) | 2 (2.4) | 2 (2.7) | 0 | |
| Long commute | 11 (12.5) | 8 (15.4) | 3 (8.3) | 16 (17.8) | 13 (19.7) | 3 (12.5) | 23 (27.7) | 22 (29.7) | 1 (11.1) | |
| Other reasons | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | |
| No answer provided | 31 (35.2) | 15 (28.8) | 16 (44.4) | 44 (48.9) | 31 (47.0) | 12 (50.0) | 28 (33.7) | 25 (33.8) | 3 (33.3) | |